New Hanover Moms Club recognizes Rare Disease Day, seeks to raise awareness

Members of New Hanover Township’s Moms Club came together as part of the ‘Day-by-day, Hand-in-hand’ campaign organized as part of Rare Disease Day, that took place on Feb. 28.
Members of New Hanover Township’s Moms Club came together as part of the ‘Day-by-day, Hand-in-hand’ campaign organized as part of Rare Disease Day, that took place on Feb. 28. Submitted photo

Moms and children of New Hanover Township came together on Feb. 28 as part of the ‘Day-by-day, Hand-in-hand’ campaign organized as part of Rare Disease Day.

Now community has been invited to take part.

The Moms Club of New Hanover Township has partnered with the Wellness Council of Boyertown for their 10th Annual Wellness Fair taking place on Saturday, March 21.

The community is being invited to walk and/or move ‘1000 Miles for Garrett.’ Teams of up to ten individuals will walk or move along a virtual path from Boyertown to Batten Rd in Brooksville, Fla.

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Rare Disease Day is very personal to the Moms Club of New Hanover. One of their own children, a four-year-old boy named Garrett, and his family, are living with the devastating diagnosis of Batten Disease.

Batten disease is a fatal disorder of the nervous system. As of now, no specific treatment is known that can halt or reverse the symptoms of Batten Disease.

Participants can be any age and any ability. According to the club, this is an opportunity to get moving for a cause and help raise awareness for those living with a rare disease.

There will be a onetime fee for families and individuals; donations are also being accepted.

Participants can sign up online via the Wellness Council of Boyertown’s website at <http://www.boyertownwellness.com> or at the upcoming spring fundraiser on Saturday, March 21.

Money raised and donated will be given to Garrett the Grand - Batten Fighter a non-profit tax exempt 501c3 organization.

The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. In the U.S., a disease is considered rare if it is believed to affect fewer than 200,000 Americans.

The Moms Club of New Hanover has created a website <www.1000MilesforGarrett.com> where more information about the challenge can be found.